ARPKD| CHF Alliance
Regional Support

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Regional Support
 

Denelle Quail, Shakopee, MN
Phone: 952-496-0214
Email:  denellebla@msn.com

Son Ezra, born 2001, diagnosed at 35 weeks.  Delivered at 36 weeks, no amniotic fluid at time of delivery, breathed fine on his own.  Yet, was given no hope for survival after birth, parents were told not to feed, not to prolong Ezra's suffering. 

Kidneys working 100% when born.  On medications for severe hypertension since birth, hospitalized 3 times for hypertension. 

Kidneys currently functioning at 50%.  Medications for hypertension are Atenolol, Amlodipine, Enalapril, and Furosemide.  Also on 3 TUMS for every meal and snack to help with high phosphorus levels.  Liver involvement, spleen enlarged borderline, portal hypertension. 

   

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