ARPKD| CHF Alliance
Regional Support

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Regional Support


Kristen Neary, Lakeville, CT
Phone:  860-435-9906
Email:  marksneary@comcast.net

First child: Helen Grace, birthdate 5/24/02, diagnosed at 28 weeks gestation, no amniotic fluid, born at 38 weeks-natural childbirth, was put on ventilator due to underdeveloped lungs, passed away two days later 5/26/2002.

Second child: Josie, born in 2004, healthy, carrier of the ARPKD gene-learned through prenatal linkage analysis testing at 14 weeks gestation.

Third child: currently expecting third daughter due in late July, healthy, carrier of the ARPKD gene-learned through prenatal linkage anaylsis testing at 14 weeks gestation



 

   

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