ARPKD| CHF Alliance
Regional Support

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Regional Support


Jessie Goodall, Reynoldsburg, OH
Phone:  614-322-9974
Email:  everettmom@msn.com

First child: J.Everett, born in 2001 - clear

Second child: Remi Elaine, birthdate 2/2/06, diagnosed at 34 weeks pregnancy, no amniotic fluid, born at 37 weeks.  Natural birth, intubated for 4 weeks, C-PAP & Canula for 2 weeks, breathed on her own for a month and half & re-intubated last week of life, double nephrectomy at one week of age, peritoneal dialysis for 3 months, CVVH/hemodialysis for 1 week, chylous ascites (lymphatic vessel) and additional ascites suspected from liver involvement, peritonitis, 3 surgeries.

Birth-4 weeks: intubated
Week 4-6: CPAP & Canula
Week 6-12: breathed room air on her own/no assistance
Week 13: re-intubated
Passed away on 5/6/2006 due to liver failure.

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