Platform for Engaging Everyone Responsibly (PEER)
Sharon F. Terry1,3, Matthew D. Smith1,3,4, and Robert Shelton2,3 1. Genetic Alliance; 2. Private Access; 3. Community Engaged Network for All; 4. Joubert Syndrome and Related Disorders Foundation Background: Patients are central in biomedical research, yet, are the least used resource. Patients should play a key role in deciding what treatments are best for them, [&hellip
