Quality of Life Research Results October 24, 2015 / admin / Comment / arpkd/chf, ARPKD/CHF Alliance, Living with ARPKD/CHF, Rare Disease A quality of life research survey was completed in May 2015 for adults living with this disease. The following poster resulted from the data. Quality of Life Survey Results Leave a ReplyYour email address will not be published. Required fields are marked *Comment * Name Email Website Save my name, email, and website in this browser for the next time I comment. Δ This site uses Akismet to reduce spam. Learn how your comment data is processed.