ARPKD| CHF Alliance
Support

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Support

The Alliance has a group of experienced and dedicated parent volunteers available to listen and provide support.*   Email or call today… that's what we're here for.  Click on names to learn more.

Rosie Bernardo, Board Volunteer Liaison
Santa Rosa, CA
Phone: 707-695-8766
Email: got2gab@gmail.com

Shannon Hall, Coordinator
Woodland Hills, CA
Phone:  818-883-2421
Email: shannon_frost@yahoo.com

Elizabeth Leabo, Portland, OR
Phone: 503-723-7276
Email:  beth_molander@hotmail.com

Kristen Neary, Lakeville, CT
Phone:  860-435-9906
Email:  marksneary@comcast.net

Diane Keating, Streamwood, IL
Phone: 630-830-5519
Email:  DKeating@wowway.com 

Denelle Quail, Shakopee, MN
Phone: 952-496-0214
Email:  denellebla@msn.com

Laurie Schnittman, Northbrook, IL
Phone:  847-480-3574
Email: Iowagirl87@sbcglobal.net

Gloria Dengler, Pawling, NY
Phone: 845-855-0826, cell 845-656-9882
Email: miglo@comcast.net

Kristin Huibregtse, Bridgeville, PA
Phone:  4
12-257-2197
Email:  matthewdean65@comcast.net

Jessie Goodall, Reynoldsburg, OH
Phone:  614-322-9974
Email:  everettmom@msn.com

Tracy Cohen, Cape Town, South Africa
Phone: +27 82 920 3522 a/h +27 21 701 5159
Email: 
akisanti@gmail.com

Lisa Smith, Brownville, NY
Phone:  315-788-1368
Email:  dlsmith24@yahoo.com

*Parent volunteers do not provide medical information or advice.  Users are encouraged to seek the advice of their appropriate medical advisors when medical situations arise.

   

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